Advocacy for Recurrent Respiratory Papillomatosis


Hoarseness

590 (80.2%)

Breathing disorder

266 (36.1%)

Swallowing disorder

130 (17.7%)

Voice abnormality

541 (73.5%)

Breathing abnormality during exercise

308 (41.8%)

Breathing abnormality at rest

234 (31.8%)

Active papilloma growth

544 (73.9%)




Table 12.2
Sites of involvement



























Above the vocal cords

295 (40.1%)

At the level of vocal cords

597 (81.1%)

Trachea

136 (18.5%)

Bronchi

59 (8.0%)

Lung

32 (4.3%)

Oral cavity

7 (1.0%)

Other head/neck regions

2 (0.3%)



Table 12.3
Adjuvant therapy outcomes  – changes in voice quality




























Adjuvant therapy

No. of patients

0–12 months pre-start of adjuvant therapy

0–12 months post-start adjuvant therapy

12–24 months post-start adjuvant therapy

DIM

59

59

Good 10 (16.9%)

Fair 23 (39.0%)

Poor 26 (44.1%)

53

Good 18 (34.0%)

Fair 19 (35.8%)

Poor 16 (30.2%)

38

Good 13 (34.2%)

Fair 16 (42.1%)

Poor 9 (23.7%)

Cidofovir

97

97

Good 15 (15.5%)

Fair 34 (35.1%)

Poor 48 (49.5%)

82

Good 26 (31.7%)

Fair 31 (37.8%)

Poor 25 (30.5%)

74

Good 22 (29.7%)

Fair 28 (37.8%)

Poor 24 (32.4%)



Table 12.4
VQOL: parents of children < 12 years old



















































































Question

1

2

3

4

5(worst)

My child has trouble speaking loudly or being heard in noisy situations

4

3

8

12

11

My child runs out of air and needs to take frequent breaths when talking

11

11

7

7

2

My child sometimes does not know what will come out when he/she begins speaking

13

9

11

3

1

My child is sometimes anxious or frustrated (because of his/her voice)

8

7

6

10

7

My child sometimes gets depressed (because of his/her voice)

16

10

5

3

4

My child has trouble using the telephone or speaking with friends in person (because of his/her voice)

8

7

10

5

6

My child has trouble doing his/her job or schoolwork (because of his/her voice)

17

8

6

4

2

My child avoids going out socially (because of his/her voice)

24

4

5

1

3

My child has to repeat himself/herself to be understood

4

5

6

10

13

My child has become less outgoing (because of his/her voice)

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Mar 14, 2018 | Posted by in OTOLARYNGOLOGY | Comments Off on Advocacy for Recurrent Respiratory Papillomatosis

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